Menu Close

“The irony of it all, Pinky…

Years of trying to take over the world, and all I had to do was say ‘moo’.”
If I could do anything as a health activist, and money was no option??
I’d buy a continent for SpoonieVille.
There’d be hot tubs and pharmacies and drinks with little pink umbrellas…
There’d be juice bars and organic fields of glorious vegetables as far as the eyes could see…
There’d be compassion and understanding and everyone would know you by your name, not a number system on a file folder…
Are you thinking what I’m thinking??
Alas, here I am…trying to push through the chaos of voices that out-speak our feelings and emotions as we battle a silent war in the State of Chronic…
What would I do?  Huhn.  First of all, I would wish to be famous.  Not, like, News at 11 famous…no, no…I mean, if I were to walk around the city, people would see me, point (which is not proper etiquette, but I never claimed to be a lady, either…) and not whisper, but *gasp*….”There she is!! That’s the badass woman who fights invisible things!!!!”
And I would get all blushy-like and give a little wave…and on the inside I would just burst and gush with the awesomeness that is awareness.  People would know my name.  People would see my face and associate the world of “SpoonieVille” as being alive and dynamic and…hell…they would almost wish they were one…
Why famous?  Because it matters.  Honestly.  Be realistic.  Maurissa? Club Mo?  Thousands and thousands of dollars raised for research? Yup.
So, how do I attempt the impossible??  Well, I’m starting by bombarding the social cyberspace with tweets, statuses, +1’s…the more you see, the more you remember.
I blog and post and spew verbal diarrhea of all things “chronic illness.”  I think, by now…if any of my friends and family were to even hear a word remotely resembling “lupus”…they would automatically shake their heads up and down and say, “Yup…know of it.”.  
It’s a start.
Secondly, I’ve got some volunteer applications to mail out to start actually, physically, getting my face OUT there…I vow to do so this week.
This is the reality…to surmise what I could do if money was no object is unfair…because I would want to ensure everyone had the medications they needed…that they wouldn’t be standing to lose their homes just to pay to keep themselves alive.  I would send everyone to wherever they needed to go for therapies and specialists.  I would sponsor grants for research into the diseases that are threatening to take me away from seeing my children grow up…get married…have my grandbabies.  I would pay for television and magazine commercials and advertisements advocating for those who cannot find the words to explain and educate.
THAT, is what I would do to take over the world.  
So, for now…I must take baby steps…push the posts, volunteer…attend my city’s walks…hell, I could start writing local officials to muster their support…
But.  BUT.  BUT!!!!
I can’t do it without the support of my family and friends.  WHY?  Because every time you take the 2.2 minutes out of your own day to read about (thus, by extension, follow) the causes of which I’m trying to make you aware…I am empowering YOU to continue to educate and inform…I’m starring in my own bloody Wella Balsalm commercial!!
I tell you.  You tell 3 friends.  They tell 3 friends…and so on…and so on…

THIS is how SpoonieVille becomes the fluid and dynamic powerhorse of the world.
Are you thinking what I’m thinking? 
“I think so, Brain, but if it was only supposed to be a three hour tour, why did the Howells bring all their money?”
This post was written as part of NHBPM – 30 health posts in 30 days:


  1. Tracy Thillmann

    Well said. Even though I studied in depth about chronic/autoimmune disease, and how to treat them in my field there is still so much to learn and I find your blog really helping me to get into the mind frame of someone who has such conditions. You are definitively educating me on a more personal level of the illness.

  2. Pingback:Recapping NHBPM Day 6: Health Activist Ambitions | WEGO Health Blog

Leave a Reply

Your email address will not be published.