Today’s juicy little “lesson” is about my perception of cognitive impairment associated with systemic lupus erythematosus (SLE).
Clinical mumbo-jumbo…I highlighted the important parts:
Prevalence of Cognitive Impairment in Systemic Lupus Erythematosus
CARBOTTE, RAMONA M. Ph.D.; DENBURG, SUSAN D. Ph.D.; DENBURG, JUDAH A. FRCP(C)
We Lupus suffers like to endearingly refer to it as “Lupus Fog”…
…added to the “Fibro Fog”…added to five kids, a house, a schedule, appointments and generally running a made-for-tv-movie kinda life while running on what already seems like 4 brain cells and…..well…..this really sucks A$$!!!
Know what sucks even more?? The researchers really can’t find a specific reason WHY.
For example. I forget things. A LOT. But it’s not like I’ve just forgotten where I’ve put my keys (which just ticks me off)….no, this is more like, “I’ve forgotten!!! I don’t know what!!” It’s frustrating and I find myself lashing out at the others around me because I just can’t seem to “keep a grip” on my reality.
It goes further….there are times, and I kid you not….where I’ve “left”. A total mind and physical body BLANK. I don’t see anything, hear anything, sense ANYthing….gone. Then back.
What in the bloody hell is THAT?!?!?! (o.O)
I think my fiance has started to perhaps put two and two together?? On my less than awesome days, and we go out of the house….it’s always the same….”Can you drive?”
I love driving.
There are times I should do the exact OPPOSITE of driving. *sigh*
Here’s another blurb taken from:
Cognitive Dysfunction in Neuropsychiatric Systemic Lupus Erythematosus
Posted: 12/11/2002; Curr Opin Rheumatol. 2002;14(5) © 2002 Lippincott Williams & Wilkins
“Since the first publication by Carbotte et al. in 1986, it has become widely accepted that cognitive dysfunction is prevalent among patients with systemic lupus erythematosus (SLE). Despite the increased awareness among clinical rheumatologists and researchers, the etiology, nature, course, and treatment for SLE-associated cognitive dysfunction remain elusive.”
I translate this to mean: You’re shit out of luck. Take care now!
Oh, but wait!!! You COULD try improving your cognitive functioning with anti-malarial drugs or low doses of corticosteriods (according the the Lupus Foundation of America)
ANTI. MALARIAL. DRUGS.
Suffice it to say, I’m hindered. My hamster has “special needs”. My OS is running #$%#$ Vista.
How to fix it? *shrug* No one knows what CAUSES it!!
Anyways….I had some other stuff to post about, but I can’t seem to remember….