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30 Things you may not know about my invisible illness. es.

Just another meme? Maybe. Hopefully not.  This is my contribution to Invisible Illness Awareness Week…you can check it out at: Invisible Illness Week

1. The illness(es) I live with is: GAD, IBS, Type 2 diabetes, Fibromyalgia, Sjogren’s Syndrome, LUPUS (SLE, organ involvement), Rheumatoid Arthritis


2. I was diagnosed with it in the year:  1996, 2005, 2010, 2011

3. But I had symptoms since: 1994

4. The biggest adjustment I’ve had to make is: Conceding that I cannot be in control, all of the time.

5. Most people assume: That there is nothing THAT wrong with me.

6. The hardest part about mornings are: I’ll pick…washing my hair. Lifting my arms that high and making my hands work is excruciating.

7. My favorite medical TV show is: I don’t watch them.

8. A gadget I couldn’t live without is: My netbook!!

9. The hardest part about nights are: Knowing I have to try to go to sleep and then do it all again in the morning. 

10. Each day I take _7+_ pills & vitamins.

11. Regarding alternative treatments I: Would love to afford it all…

12. If I had to choose between an invisible illness or visible I would choose: Invisible. You can always pretend nothing’s wrong…because it looks like it.

13. Regarding working and career: Stagnant.

14. People would be surprised to know: How often I cry.

15. The hardest thing to accept about my new reality has been: Modifying things that were once so very easy to do/manage.

16. Something I never thought I could do with my illness that I did was: Keep going.

17. The commercials about my illness: Simply tell you to take a pill.

18. Something I really miss doing since I was diagnosed is: Not having to think about having any kind of illness.

19. It was really hard to have to give up: Order. Structure. Planning.

20. A new hobby I have taken up since my diagnosis is: Writing.

21. If I could have one day of feeling normal again I would: Honestly? Spend it having to re-adjust to a pre-existing state of “normal”!

22. My illness has taught me: Strength. Courage. Perseverance.

23. Want to know a secret? One thing people say that gets under my skin is: “I don’t know how you do it…”

24. But I love it when people: Shoot me an esteem-boosting compliment…

25. My favorite quote that gets me through tough times is: “Life isn’t about waiting for the storm to pass…it’s about learning to dance in the rain…”

26. When someone is diagnosed I’d like to tell them: It’s not just about you. It’s also about your caregivers and those who really love you…keep them in the loop to your thoughts and fears!!

27. Something that has surprised me about living with an illness is: The psychological impact, not just the physical.

28. The nicest thing someone did for me when I wasn’t feeling well was: Manage the entire household in my stead…I love you, Shane.

29. I’m involved with Invisible Illness Week because: I am helping to bring visibility to something that affects not just me, but my entire family…and countless other families…across genders, across income thresholds, across ages, race and academic levels…each and every day.

30. The fact that you read this list makes me feel: HOPEFUL.


  1. Tamara Sancy

    Hey, I read your blog everytime I can, I feel very connected with your experiencies, I’m from Chile and I have SLE.
    We don’t have Invisible Illness Awareness week here but I loved this “meme” so I’ll translate it and answer it myself so I can share it with my readers.
    Hugs from South America 🙂

  2. Pingback:30 Things About My Invisible Illness You May Not Know: Fibromyalgia | Fibromyalgia Coach, Tami Stackelhouse

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