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Tag: fibro

To Choose a Memory…

I did A Thing. Again. I made my way for the annual Kaleidoscope Gathering to connect and join with hundreds of my friends to celebrate our spiritual communities and share the gifts of Time and Knowledge. I’d had a bit of a snafu getting there this year…but, being the theme was “Cosmos”…I was not going to go down without punching Lupus in the proverbial junk. See, I was leaving three days after yet another, though final, chemo infusion. I was puking up until the night before, after working my shift, after trying to do All The Things to ensure my…

It’s a Lupus Inter-versary!

It’s totally a word. Because, reasons. Here I sit, finally at my laptop, writing on a blog (I just typed “blag” because it’s been One Of Those Days) that turns SEVEN YEARS OLD today! Facebook reminded me of of something I’d posted seven years ago (I think it was that I’d joined Facebook) and I remembered it was end of March and “hey-didn’t-I-start-my-blog-around-this-time” went through my mind powers. Indeed. Seven years ago today I’d started Lupus Interrupted with a hope to help friends and family understand Lupus and all of its dastardly ills. Seven? Honestly? It doesn’t feel right. I…

A Canadian Journey Through Medical Marijuana: Part 2

It’s been a few weeks since my “package” arrived. All wrapped up like an evidence bag, furthering my irritation at the stigma attached to medical marijuana, yet satisfying my need to have some anonymity. Ironic, isn’t it?   I have been waiting for this moment for MONTHS. Application snafu’s, time to process, yadda yadda….and now that it’s here? Frustrated as fuck. So many reasons. Grab a cuppa and let me tell you all about it. I now have marijuana in my house. I cannot even BEGIN to articulate the psychological issues I’m having with it being in my house, due…

Hub-a-loo…with *jazz hands*

Did I say how much I love The Hub? Yes? Then let me sing you the song of my people:   Did you miss it? How I created The Hub…our family command centre?? Oh, sweet mother of jeebuz…please check it out. It has saved my sanity and brought me an inner peace not felt since…EVER. True story. Like, REALLY true story. From weekly menu listing so I don’t have to hear, “What’s for dinner?” from four separate younglings on four separate occasions within the first forty minutes of home-from-school…. …to house tasks and a whole lotta chalk fun. <3 Here’s…

Chronic Badass SuperAbility #29

*drumroll* Being able to not only regularly, but consistently hit the “backspace” button. Every time. Know why? Took me damn near SEVEN tries to even type that mutha’ freakin’ sentence! I can’t believe I’m even attempting to type a post this evening (case in point, I just typed, “pot”)…Why? I’ve spent the majority of the day hammering out (not literally, holy crap) wedding invitation “somethings”.  Today, it was specifically an hour spent printing out inserts (No biggie), three hours spent embossing “celebrate” on the front cover of the invite (Holy crap on a cracker), and another hour and a half…