I did A Thing. Again. I made my way for the annual Kaleidoscope Gathering to connect and join with hundreds of my friends to celebrate our spiritual communities and share the gifts of Time and Knowledge. I’d had a bit of a snafu getting there this year…but, being the theme was “Cosmos”…I was not going to go down without punching Lupus in the proverbial junk. See, I was leaving three days after yet another, though final, chemo infusion. I was puking up until the night before, after working my shift, after trying to do All The Things to ensure my…
It’s been real, ya’ll. Trying to manage All The Things in the midst of a STOOPID crazy flare (fibro *and* lupus). And, by “stoopid”…I mean bat-shit crazy levels of “oh my gods I want to run head first into a fucking wall…” Then, one of my guinea pigs passed away. Y’know when you’ve been bottling shit up for eons, but don’t really know you’ve been bottling shit up, even though you probably sorta-kinda also should know you’ve been bottling shit up and then that ONE thing happens and…SPLOOSH…floodgates open down to the very fibre of your essence? That happened. Legit.…
It’s totally a word. Because, reasons. Here I sit, finally at my laptop, writing on a blog (I just typed “blag” because it’s been One Of Those Days) that turns SEVEN YEARS OLD today! Facebook reminded me of of something I’d posted seven years ago (I think it was that I’d joined Facebook) and I remembered it was end of March and “hey-didn’t-I-start-my-blog-around-this-time” went through my mind powers. Indeed. Seven years ago today I’d started Lupus Interrupted with a hope to help friends and family understand Lupus and all of its dastardly ills. Seven? Honestly? It doesn’t feel right. I…
I didn’t know how to re-start writing again. I tried, then, I stopped. Then, I tried, then, I deleted. THEN, I was like, “Omfg just fucking WRITE! Something, anything…anything at all.” I always seem to pop on to write when things are really snafu’d and weebly-wobbly, timey-wimey levels of bat-shit crazy, or just plain shitty. Like, spring cleaning of a yard of dog-shit, levels of shitty. Now is that time. Just fair warning. But first!! Let’s start with how this little cyclical writing is gonna throw down: Lupus Fibro Attempted Murder A boat “Wait, what?!” The problem with wrapping oneself…
oooOOOOooooo did I just use a cuss in a blog post title? Fucking right I did. I’ve been unquestionably absent from posting for what seems like EONS…and I’m ready to delve back into writing about the going’s on of my made-for-tv-movie kind’o’life. 2016 is a big bag of smashed assholes. True story. But…the journey continues. “But…you’re in remission! Isn’t that a great thing?” Well, HELLS YEAH, baby!!! Even got my septum pierced in a celebratory *middle fingers salute* to everything Lupus. Or, maybe some kind of mid-life crisis thing. Whichever. Wish it’d been a car, though. 😉 Do you know…
It’s so simple, I’m a little chagrined that I’ve not done this to date. Because, pain. Chronic, all-the-time, Hounds of Hell ouchies that plague my badassery on a level that makes one want to run head first into a wall. But, my BFF, coffee, nixs that option. Regularly. Because, coffee. 😉 Maybe I’d not cared to make my own ice packs because I don’t like ice packs. They’re too hard, too stiff, too much addition to the pain that requires an ice pack to begin with!! Not this. Nope. I highly recommend you give this a go, because it doesn’t…
Did I say how much I love The Hub? Yes? Then let me sing you the song of my people: Did you miss it? How I created The Hub…our family command centre?? Oh, sweet mother of jeebuz…please check it out. It has saved my sanity and brought me an inner peace not felt since…EVER. True story. Like, REALLY true story. From weekly menu listing so I don’t have to hear, “What’s for dinner?” from four separate younglings on four separate occasions within the first forty minutes of home-from-school…. …to house tasks and a whole lotta chalk fun. <3 Here’s…
BIRDS. Just puttin’ it out there right away. Stepping outside for the school bus run and hearing the birds. Chirp-chirping away. Spring. Relief. Mood boost without the pharmaceuticals or even, dare I say, the coffee. \m/ The week was a challenging one. My littlest twin was having a mental health crisis and, had it not been for his doting sister, walked off the school bus and went to keep on walking. He wasn’t walking home. Let’s just let that sink in for moment. Managing your demons when you’re 41 is one thing. I can’t imagine how life looks to a…
Well, this was simply the most ridiculous week… …EVER. Between Monday and today, I’ve concurrently managed a fractured orbital bone thingie-part (I’m far too lazy to look it up), a dog fight, a youngling’s asthma attack and the death of a departed whilst contained within the boundaries of starting three college courses and managing the emotions from all of these. That doesn’t make me a goddamn martyr. That simply makes me an ordinary woman doing bat-shit crazy things within the chaos of her reality. Which, admittedly, is a little excessively chaotic at the moment. Listen, I post because it’s my…
Likely one of the most boring titles EVER…but totally necessary and, believe me, a skill set in a parenting toolbox that you never thought you might need. As a mother of five, living with systemic lupus erythematosus…the topic is a hot one among my household. I had found this article: You have lupus and you don’t understand it — How can you explain it to your children? By Robert H. Phillips, Ph.D. Not going to lie…I think it kind of superficially sucks lacks in the realities and comes across as a bit…je ne sais quoi…unrealistic? For example: “Resulting discussions, if handled properly,…