Kind of. In my reality, it seems…. Some days, I’d rather not have known about all of this. Some days, I wish I could return to the safety of thinking I was just crazy. I used to keep everything hidden. I used to push through everything for the sake of all humanity. (okay, maybe not…but still…felt like it) Now, it’s all I think about. It’s all I spend time on my computer for…researching…blogging…forum writing to find out just how UN-crazy I am…and how most utterly NOT alone I am….because I still feel it. *shrug* I catch myself starting to complain…
Clearly need more coffee (ask me to give that up right now and I will rip your arms off and beat you with them. Just sayin’.)….what I MEANT to say was: I need some sort of timer/alarm/beepythinger that I can set for periods of time to remind myself of things…but it has to be funky/girly/awesome. Why do I need this? Because….*cringe*….I forget to drink. As in, really, truly forget to intake the liquid that is essential for well-being. So I’m on the hunt….for example: Anyhoooooooo…..pain threshold this week is nil. Everything hurts and it’s frustrating. I felt like I was…
This kind of came up last night in one of my many ramblings my poor man had to endure listening to yet AGAIN…. How can I, one who did no less than THREE room renos in ONE week, be unable to do dishes the next? (okay, well that one is pretty self-explanatory….I was a DUMBass) The problem with this disease is that it strikes wherever, whenever. Not only is one week different from the next but, often, one DAY is different from the next. Are all days shitty? No. However, understand that one such as myself MUST function nonetheless…and often…
….buggernackles*. * This is my trademark comment. If you use it, you have to buy me a coffee, adopt a pet, whatever gives you good karma… So, I go for my follow up for the (and by “the”, I mean THE) appointment from 2 weeks ago. Today was the day I was going to receive utter enlightenment about where we go from here, and to have a consideration for perhaps how long I’ve actually been suffering from this all. Today was SO not that day! My damned friggin’ diabetes is STILL HERE! What in the blue hell ELSE needs to…
….that there are FIVE types of lupus?? 1. Systemic lupus erythematosus (SLE) which affects the joints and organs. 2. Discoid lupus which affects the skin. 3. Sub-acute cutaneous lupus erythematosus which is characterized with non-scarring skin lesions. 4. Drug-induced lupus which can occur after a drug interaction. 5. Neonatal lupus is lupus in newborns. Please follow and like us:
I’m new to a lot of the healthy eating stuff. Oh, my family eats well. Enough. But you can always stand to eat BETTER. So, I’m lacking. In EVERYTHING. Which as I am certain is NOT helping my conditions. This weekend I took a jaunt out to Shopper’s Drug Mart and picked up a container of Greens+ Multi and a package of the protein shake (I love protein shakes!!…this one is Orangesicle flavour). Instructions for newbies: 1/3 scoop to 375 mL of water or juice. I used 1/2 scoop to 400 mL (because that’s what my water bottle had on…
I think the most difficult part of this disease is, indeed,…day by day, you never know what you’re gonna get. Flare. “I’m having a flare.” What in the blue hell is a “flare”? You know when your knee gets all wonky when the weather changes and “flares up”? That sucks and is very aggravating. For people with lupus, it can mean so much more, and is likely that the “flare up” can last from days, to weeks, to months…even years…at a time. Added, that knee pain? You can also put it into your fingers, wrists, elbows (for me, to a…
Two questions, one answer. I like this link the best because it doesn’t offend my brain cells (of which I’m currently down to three) with medical mumbo jumbo bullhog…. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001471/ What do you need to take from this? 1. You can’t “see” it….I don’t have cancer, therefore you can’t see me lose my hair from chemo. I don’t have a broken limb, so you can’t see me wearing a cast. I don’t have kidney failure (edit: pre-diagnosis), so you can’t see me at the hospital for dialysis. My body attacks itself. 2. It says, “may”….I may have intense joint pain,…