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A brave New Year…

Like most people, I’ve been spending a fair bit’o’time in the chaos of my made-for-tv-movie kind’o’life and taking stock of the year that was. By “fair bit of time,” I really mean, “The entire month of December with it’s asshat emotional holiday season such that I didn’t post once because I couldn’t handle any of it…” amount of time. To be clear, this year was a total and utter asshat. True story. I’m kind of glad I didn’t say, “2015 is going to be MY year!” with a stupid-ass grin on my face because, as it turns out…I’d have taken…

Alfont vs Elf on a Shelf

It’s that time again. If you’re on Pinterest, you know. If you’re on Facebook, your feed is soon to become littered with picture-perfect elven shenanigans. You know…the Elf on a Shelf. I must restrain my excitement to want to hurl the little bastard through the window. Whatever do you mean? Isn’t he the SHEZAM?! Isn’t it FUN?!?!?!?! No. No, he is not. And, no, no it is not. And, I will tell you why: I have two remaining brain cells. On most days it’s a godsend that I remember to pee. I came clean about the Tooth Fairy because I…

Talking to your kids about Lupus

Likely one of the most boring titles EVER…but totally necessary and, believe me, a skill set in a parenting toolbox that you never thought you might need. As a mother of five, living with systemic lupus erythematosus…the topic is a hot one among my household. I had found this article: You have lupus and you don’t understand it — How can you explain it to your children? By Robert H. Phillips, Ph.D. Not going to lie…I think it kind of superficially sucks lacks in the realities and comes across as a bit…je ne sais quoi…unrealistic? For example: “Resulting discussions, if handled properly,…

Dear Mail Fairy….

Dear Mail Fairy, I received your card in the mail a few days ago, in fact. I’ve just been so busy with The Everything that time has alluded me to post appropriately. I see that you’ve intentionally neglected to leave a signature, and I am going to be sneaky and thank you anyway…here. Thing is, it’s a Thank You card. The words are, indeed, fitting. And, you’ve no idea why I’m still rereading the words. I’mma gonna fill you in. Today would be one of those days where I’m all emo’n’shit and wonder why the bloody hell I even bother.…

I’m no astronaut. I’m a Lupie.

I loathe that term. In fact, I’m not a huge fan of “spoonie” or any other terms to describe someone with chronic disease. I don’t really know why, but I want to punch those terms in the junk. The world is chock full of labels. I’m not really wanting to have a label. Ever. I think it invalidates people who don’t fit in to that label. Alas, I digress. Astronauts. Have you ever had freeze dried ice cream? I have. It’s okay. It’s not ICE cream…to which I have a strong love affair. Ben & Jerry’s, specifically. I digress again.…

When the wind blows…

…the cradle will fall, bounce, ricochet off the nearest laundry basket and come to a screeching halt in the deepest halls of your soul. Sometimes, life throws you a curve ball. Sometimes, life hits you upside the head with a baseball bat repeatedly until it becomes clear that the definition of insanity is the act of doing the same thing over and over and expecting different results. My husband and I parted ways last week. [enter the sounds of flabbergasted-ness, stage left] Out of left field? No. Why, then, such an emphatic gasp-a-tory response from the masses? Because, as transparent…

A ”dash” at 800km/h…

es·cap·ism əˈskāpˌizəm/ noun the tendency to seek distraction and relief from unpleasant realities, especially by seeking entertainment or engaging in fantasy. So, I did. On Friday, I strapped my I’ve-earned-this-ass into a pressurized metal canister hurtling through time and space and left this dastardly city behind me at 800km/h and 21,000ft in the air. I guess it’s better than running headfirst into the river. I suppose it’s a better story than pulling a Thelma & Louise. I wonder what would have happened had I chosen not to re-strap myself into a pressurized metal canister hurtling through time and space and return…

Lupus Advocacy: It’s a Thing

Systemic Lupus Erythematosus Interruptus. It’s a thing. Specifically, it’s a health thing within which I aim to take over the world. #notreally But, Lupus Interrupted is here and it’s here because it’s necessary. Like, air. Or, chocolate. Whichever. Advocacy. Networking. Education. Publication. It’s time for me to reflect and take stock of a blog that I had initially started for my family and friends to travel along with me during my made-for-tv-movie kind’o’life. A time to appreciate those whopping 23 people who read my very first blog post that very first day. Lupus Interrupted has grown exponentially in a way that…

Product Review: ActiPatch®

How many of you have back pain? Betting dollars to donuts there are oodles of you who, just like me, endure chronic pain. Having Fibromyalgia, I am no newbie at the aching. I was sent the ActiPatch® Back Pain Relief to review for my readers and followers and… friends…you are going to want to read it.   I’m no stranger to back pain. I’ve had disc ruptures. I’ve scar tissue from being kicked in the back by a horse when I was 20 years old. I have Fibromyalgia. I endure prolonged periods of sciatica. I have degenerative disc disease (as do…